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PRE-TRANSPLANT:

  • Transplant Living - UNOS organ facts and surgeries: Learn about the liver and other organs that are available for transplant, how they work and their transplant procedures.

  • UNOS - United Network for Organ Sharing (UNOS), the private, non-profit organization that manages the United State's organ transplant system under contract with the federal government.

  • MELD Calculator - The Model for End-Stage Liver Disease (MELD) is a calculated formula used to assign priority to most liver transplant candidates age 12 and older based upon their medical urgency.

  • Exception Scores - MELD exception scores may be an option for liver transplant candidates whose medical circumstances require special attention.  

  • Understanding HE - Resources for Hepatic encephalopathy (HE), a complication of cirrhosis, a severe form of chronic liver disease. One of the important functions of the liver is to clean the blood; when the liver is damaged, it can no longer properly clean toxins (like ammonia) from the blood. This buildup of toxins can reach the brain, potentially causing HE and worsening brain function. Early HE symptoms can start slowly and may go unnoticed. Symptoms of HE can be both physical and mental.

  • Davita Recipes - Low sodium, kidney-friendly recipes. Use the search bar to find your desired foods and filter results by diet type, dish type, cooking method, cuisine, holiday, and number of servings on the left-hand side.

  • AlloCare - Whether you're on the transplant waitlist or a seasoned transplant recipient, AlloCare® can make managing your day-to-day health easier. Stay on track with everything at your fingertips and easily monitor all your vital health metrics with an app designed just for you. Created by CareDx.

  • Cuvrior - The first innovative treatment for Wilson Disease in over 30 years. Cuvrior is used to treat adults with stable Wilson Disease who are de-coppered and able to take penicillamine.

  • RX Outreach - A nonprofit pharmacy committed to helping people get the medications they need at an affordable price.

  • NeedyMeds - A national non-profit organization that maintains a website of free information on programs that help people who can't afford medications and healthcare costs.

  • FamilyWize - Provider of prescription discounts, drug coupons and a prescription discount card.

  • PAN Foundation - Helps underinsured people with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.

  • Air Care Alliance - A nonprofit public service organization that offers free air transportation services provided by pilot volunteers from the many public benefit flying organizations, to transport patients in need to facilities where they are able to receive medical attention they might otherwise have to do without. ​​

MENTAL HEALTH, ALCOHOLISM & ADDICTION: 

  • Substance Abuse & Mental Health Services Administration - (SAMHSA) is the agency within the U.S. Department of Health and Human Services (HHS) that leads public health efforts to advance the behavioral health of the nation and to improve the lives of individuals living with mental and substance use disorders, and their families.

  • Alcoholics Anonymous - (A.A.) is a fellowship of people who come together to solve their drinking problem. It doesn’t cost anything to attend A.A. meetings. There are no age or education requirements to participate. Membership is open to anyone who wants to do something about their drinking problem. A.A.’s primary purpose is to help alcoholics to achieve sobriety. ​Everything AA is a useful mobile app with a worldwide meeting finder and other tools. 

  • Al-Anon - A mutual support program for people whose lives have been affected by someone else’s drinking. By sharing common experiences and applying the Al-Anon principles, families and friends of alcoholics can bring positive changes to their individual situations, whether or not the alcoholic admits the existence of a drinking problem or seeks help. Al-Anon Family Groups is a mobile app to connect with other members and find online meetings.

  • Narcotics Anonymous - (NA) offers recovery from the effects of addiction through working a twelve-step program, including regular attendance at group meetings. The group atmosphere provides help from peers and offers an ongoing support network for addicts who wish to pursue and maintain a drug-free lifestyle. NA’s approach makes no distinction between drugs including alcohol. Membership is free, and NA has no affiliation with any organizations outside of NA including governments, religions, law enforcement groups, or medical and psychiatric associations. NA Meeting Search is a mobile app to help find meetings anywhere in the world with daily meditations.

  • FindTreatment - The confidential and anonymous resource for persons seeking treatment for mental and substance use disorders in the United States and its territories.  

  • Psychology Today - The leading provider of mental health referrals and services online. Lists clinical professionals, including psychologists, psychiatrists, social workers and counselors who provide mental health services to the public across the U.S. and internationally. Connecting users to mental health professionals when clinical help is desired.

  • Suicide & Crisis Lifeline - The 988 Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals in the United States. Dial 988.

  • Veterans Crisis Line - The Veterans Crisis Line provides 24/7 free, confidential crisis support for Veterans and their loved ones. You don't have to be enrolled in VA benefits or health care to call. Dial 988 then press 1 or Text 838255.

STATE & FEDERAL ASSISTANCE:

  • The Family & Medical Leave Act - (FMLA) entitles eligible employees of covered employers to take unpaid, job-protected leave for specified family and medical reasons with continuation of group health insurance coverage under the same terms and conditions as if the employee had not taken leave.

  • State Disability Insurance - The California State Disability Insurance (SDI) program provides short-term Disability Insurance (DI) and Paid Family Leave (PFL) wage benefits to eligible workers who need time off work. You may be eligible for DI if you are unable to work due to non-work-related illness or injury. You may be eligible for PFL to care for a seriously ill family member. (As of January 2023, only five states offer short-term or temporary disability benefits: California, Hawaii, New Jersey, New York, and Rhode Island)

  • Social Security Disability Insurance - Managed by the Social Security Administration, designed to provide income supplements to people who are physically restricted in their ability to be employed because of a notable disability, usually a physical disability. Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs provide assistance to people who meet their requirements for disability. To learn more about disability evaluation with chronic liver disease, click here.

POST-TRANSPLANT:

  • Prograf - Astellas, the makers of the prescription medicine, Prograf® (Tacrolimus), used to help prevent organ rejection in people who have had a kidney, liver, heart, or lung transplant, created a co-pay card; eligible patients with commercial prescription insurance may pay as little as $0 per prescription, for savings up to $3,000.

  • MG Plus Protein Magnesium supplement (133 mg), available in 500-tablet bottle that can be ordered direct from Miller Pharmacal Group, Inc. For first-time customers, please call: 1 (800) 323-2935 between 7:30am-4pm Central Time.

  • Angel MedFlight - Bedside-to-bedside transportation for transplant recipients.

  • Dental Lifeline - The Donated Dental Services (DDS) program provides free, comprehensive dental treatment to our country’s most vulnerable people with disabilities or who are elderly or medically fragile. In addition, they support many veterans through their DDS program. These are people who cannot afford necessary treatment and cannot get public aid. The program operates through a volunteer network of 15,000 dentists and 3,400 dental labs across the United States.

  • ROAD iD - Innovative medical ID tags and bracelets.​

ADDT'L RESOURCES, INFORMATION & NON-PROFITS:

  • Liver Health Foundation - LHF is a California-based nonprofit organization dedicated to supporting the local liver community.

  • National Kidney Foundation - NKF is a voluntary health organization seeking to prevent kidney and urinary tract diseases, improve the health and well-being of individuals affected by these diseases, and increase the availability of all organs for transplantation.

  • American Diabetes Association - The nation's leading nonprofit health organization providing diabetes research, information and advocacy. Its mission is to prevent and cure diabetes, and to improve the lives of all affected by diabetes.

  • Transplant Unwrapped - A 501(c)(3) non-profit organization with the mission to ensure every patient, caregiver, and member of the intestinal disease community feels well-educated and supported throughout their journey with intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation.

  • Donate Life America - A 501(c)(3) non-profit organization leading its national partners and Donate Life State Teams to increase the number of donated organs, eyes and tissues available to save and heal lives through transplantation while developing a culture where donation is embraced as a fundamental human responsibility.

  • OneLegacy - The nation’s largest Organ Procurement Organization (OPO), serving the diverse Southern California region. OneLegacy educates about and facilitates donation, as well as builds a community of long-term support for the families who give the generous gift of life.

  • Organ Donation - An informational site sponsored by the Health Resources and Services Administration (HRSA) and the Department of Health and Human Services (DHHS).

  • National Foundation for Transplants - NFT is a national non-profit organization that offers assistance through fundraising and grant programs for transplant-related costs not covered by public or private insurance. If you are a patient or a family member, they’re here to help raise the funds you need to cover your out-of-pocket transplant-related expenses.

  • Help Hope Live - A nonprofit national organization dedicated to raising money for medical bills and expenses through crowdfunding since 1983. 

  • Ava's Heart - A 501(c)(3) non-profit charitable organization that provides critically needed assistance to transplant patients who are unable to access or afford it.

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